Chicago Resources
Illinois ABLE (Achieving a Better Life Experience) accounts make it possible for people with disabilities and their families to save and invest for expenses related to living with a disability without losing, or losing access to, federal means-tested benefits such as SSI, SSDI and Medicaid. Earnings and withdrawals are tax-free if they are spent on a broad range of qualified disability expenses including housing, health and wellness, education and training, therapy, basic living expenses and more.
“What You Need to Know About Your Supplemental Security Income (SSI) When You Turn 18”
This publication helps youth prepare for the transition from school to adult life. It provides information about SSI work incentives that primarily affect youth, as well as information about common programs and services that parents, guardians and youth may find helpful. Specific programs covered include the Student Earned Income Exclusion, SSI Continued Payments (Section 301), vocational rehabilitation and the Department of Education’s Parent Centers. Information on Medicaid, the importance of keeping health insurance and having a primary care provider are also included.
Since 2011, Internet Essentials from Comcast has connected more than 8 million low‑income Americans to low‑cost, high‑speed Internet at home. Families may qualify if they are eligible for public assistance programs including the National School Lunch Program, Housing Assistance, Medicaid, SNAP, SSI and others.
The Parent Advocacy App for Families of Deaf or Hard-of-Hearing Children
The Parent Advocacy app is a free application for families of children who are deaf or hard of hearing attending Individualized Education Program meetings, 504 Plan meetings and more.
The app aims to help you understand your child’s rights and prepare to work with the school in the best interest of your child.
National Library Service for the Blind and Print Disabled (NLS)
The National Library Service for the Blind and Print Disabled (NLS ) is a free braille and talking book library service for people with temporary or permanent low vision, blindness, or a physical or perceptual disability that prevents them from reading or holding the printed page. Through a national network of cooperating libraries, NLS offers books the way you want them: in braille or audio, mailed to your door for free or instantly downloadable.
NLS works to ensure that all may read by providing eligible individuals access to reading material regardless of age, economic circumstances or technical expertise.
PACER’s National Bullying Prevention Center
PACER’s National Bullying Prevention Center provides resources and information regarding the bullying and harassment of students with disabilities.
PACER’s National Parent Center on Transition and Employment
Information and resources for families of youth with disabilities on transition planning, civil rights, work-based learning, higher education and more.
The Sibling Leadership Network provides siblings of individuals with disabilities the information, support and tools to advocate with their brothers and sisters. Their website offers ways to get involved, policy and advocacy information, and family-specific resources including resources for teenage/young adult siblings, resources for adult siblings and resources for parents and family members.
Sibling Resources: A Bibliography of Selected Resources for Siblings of Children with Disabilities
PACER Center has a list of Sibling Resources for families to explore that offer support, resources and stories about siblings of children with disabilities. The annotated bibliography includes articles and books written for adults, books for children, newsletters, videos and organizations.
The Danny Did Foundation works toward its mission to prevent deaths caused by seizures with these main goals in mind: advancing public awareness of Sudden Unexpected Death in Epilepsy (SUDEP), enhancing the SUDEP communication model between medical professionals and families afflicted by seizures, and the mainstreaming of seizure detection and prediction devices that may assist in preventing seizure-related deaths.
The Danny Did Foundation’s grant program does provide financial assistance for purchasing seizure detection and seizure prediction devices to qualifying individuals.