Chicago Resources
Fresh Start Surgical Gifts provides reconstructive surgery at no cost to families of children who are uninsured, underinsured, denied procedures as cosmetic or the deductible would be a financial hardship to the family. Surgery weekends are held three times a year at Comer Children’s Hospital.
Special Recreation Associations in Illinois
The Special Recreation Associations Network of Illinois (SRANI) is a network of therapeutic recreation agencies. Special Recreation Associations provide community-based special recreation services to children and adults with disabilities. You can see a list of special recreation cooperatives available in Illinois.
For more information, visit the SRANI website.
Premier Kids: Primary Care at La Rabida Children’s Hospital
Premier Kids is a medical home program for children birth to age 6 with special needs. It provides primary care services for children with medically complex conditions and/or developmental delays. To make an appointment, call (733) 256-5700, ext. 2.
Illinois Student Assistance Commission
The Illinois Student Assistance Commission (ISAC) provides Illinois students with information and assistance to help make education beyond high school accessible and affordable.
ISAC offers free comprehensive, objective, and timely information on education and financial aid for students and their families. Help includes:
- The ISAC Student Portal with free online tools, events and resources for students, as well as short videos about college planning and financial aid.
- State scholarship and grant programs
- ISAC College Q&A, a free texting service that allows any student to submit their financial aid and college planning questions and receive a response from ISAC staff.
ISAC also offers assistance through the agency’s call center at (800) 899-4722 (ISAC).
DSCC’s Health Care Transition Tip Sheet
Health care transition means moving from pediatric (child) to adult health care. A good transition takes planning. This tip sheet from the Division of Specialized Care for Children (DSCC) can help you and your family plan for transition. It includes information on who should help with health care transition planning, where to find resources and steps you can take to get the services you need so you can lead the kind of life you want to have.
Developmental Disability Services
The Illinois Department of Human Services has information about how to apply for developmental disability services.
Illinois Council on Developmental Disabilities
The Illinois Council on Developmental Disabilities (CDD) helps lead change in Illinois so all people with developmental disabilities exercise their right to equal opportunity and freedom.
ICDD provides information, investments and initiatives to ensure that people with developmental disabilities and their families have a part in the design of and access to culturally competent services, supports and other assistance and opportunities that promote independence, productivity and integration and inclusion into the community.
The HealthWell Foundation aims to reduce financial barriers to care for underinsured patients with chronic or life-altering diseases. It provides financial assistance to eligible individuals to cover copays, health care premiums, deductibles and out-of-pocket expenses.
The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to supporting families and ensuring access to quality respite services for the residents of Illinois. The IRC assists caregivers by connecting them to resources in their area, providing training on respite topics and having funding available for emergency respite. The IRC helps caregivers of individuals across the lifespan with any disability.
The Emergency Respite Care Program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source. Emergency respite care may be for an unplanned or planned event for reasons including:
- Caregiver illness (physical, mental or emotional)
- Caregiver hospitalization
- Work-related situation
- Reduction of stress level
The website gives examples of qualifying circumstances and information on how to apply. See the emergency care flyer for more details. (The flyer is also available in Spanish.)
For more information, contact:
- The Illinois Respite Coalition at (866) ILL-RESP (455-7377), ext. 101, or email irc.programassistant@gmail.com.
- Spanish-speaking callers may call (866) 866-ILL-RESP (455-7377), ext. 103, or email cnava@illinoisrespitecoalition.org
CHECK is an innovative health and behavioral health care delivery organization working to improve overall health and quality of life by making sure that patients and their families receive the resources and care they need.
The CHECK team provides comprehensive and coordinated health and behavioral health care coordination to patients across the lifespan. Its team consists of Care Coordinators and Behavioral Health Care Coordinators who provide assistance with navigation of the healthcare system, referrals to health and social services, and offer ongoing patient and family support with the goal of improving physical, behavioral, and social health.
The CHECK program is located in the Department of Pediatrics in the College of Medicine at the University of Illinois Chicago (UIC) and University of Illinois Hospital and Health Sciences System (UI Health) and operates as the Department of Pediatrics Clinical Population and Behavioral Health Program.
CHECK also provides disease-specific education modules on sickle cell disease, diabetes, asthma and prematurity.