Resource Directory /

Chicago Resources

  • DSCC’s Health Care Transition Tip Sheet

    Health care transition means moving from pediatric (child) to adult health care. A good transition takes planning. This tip sheet from the Division of Specialized Care for Children (DSCC) can help you and your family plan for transition. It includes information on who should help with health care transition planning, where to find resources and steps you can take to get the services you need so you can lead the kind of life you want to have.

    Health Care Transition tip sheet in English

    Health Care Transition tip sheet in Spanish

  • Illinois Council on Developmental Disabilities

    The Illinois Council on Developmental Disabilities (CDD) helps lead change in Illinois so all people with developmental disabilities exercise their right to equal opportunity and freedom.

    ICDD provides information, investments and initiatives to ensure that people with developmental disabilities and their families have a part in the design of and access to culturally competent services, supports and other assistance and opportunities that promote independence, productivity and integration and inclusion into the community.

  • HealthWell Foundation

    The HealthWell Foundation aims to reduce financial barriers to care for underinsured patients with chronic or life-altering diseases. It provides financial assistance to eligible individuals to cover copays, health care premiums, deductibles and out-of-pocket expenses.

  • Illinois Respite Coalition

    The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to supporting families and ensuring access to quality respite services for the residents of Illinois. The IRC assists caregivers by connecting them to resources in their area, providing training on respite topics and having funding available for emergency respite. The IRC helps caregivers of individuals across the lifespan with any disability.

    The Emergency Respite Care Program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source.  Emergency respite care may be for an unplanned or planned event for reasons including:

    • Caregiver illness (physical, mental or emotional)
    • Caregiver hospitalization
    • Work-related situation
    • Reduction of stress level

    The website gives examples of qualifying circumstances and information on how to apply. See the emergency care flyer for more details. (The flyer is also available in Spanish.)

    For more information, contact:

  • CHECK

    CHECK is an innovative health and behavioral health care delivery organization working to improve overall health and quality of life by making sure that patients and their families receive the resources and care they need.

    The CHECK team provides comprehensive and coordinated health and behavioral health care coordination to patients across the lifespan. Its team consists of Care Coordinators and Behavioral Health Care Coordinators who provide assistance with navigation of the healthcare system, referrals to health and social services, and offer ongoing patient and family support with the goal of improving physical, behavioral, and social health.

    ​The CHECK program is located in the Department of Pediatrics in the College of Medicine at the University of Illinois Chicago (UIC) and University of Illinois Hospital and Health Sciences System (UI Health) and operates as the Department of Pediatrics Clinical Population and Behavioral Health Program.

    CHECK also provides disease-specific education modules on sickle cell disease, diabetes, asthma and prematurity.

  • DSCC’s Solving Problems and Making Your Own Decisions Tip Sheet

    The Division of Specialized Care for Children (DSCC) created this tip sheet to help youth with special healthcare and their families/caregivers build important problem-solving and decision-making skills. This tip sheet includes suggestions, steps and resources for developing the skills you need to be more independent and responsible as an adult.

    Solving Problems and Making Your Own Decisions tip sheet in English

    Solving Problems and Making Your Own Decisions tip sheet in Spanish

  • Medical Grants Through United Healthcare Children’s Foundation

    United Healthcare Children’s Foundation’s (UHCCF) mission is to help fill the gap between what medical services/items/equipment a child needs and what their commercial health benefit plan will pay for.

    UHCCF grants provide financial help/assistance for families with children that have medical needs not covered or not fully covered by their commercial health insurance plan.

    To be eligible for grants, children must be 16 years of age or younger at the time of application and have a Social Security number. Eligible families must also meet UHCCF’s economic guidelines.

    Families could receive up to $5,000 annually and $10,000 a lifetime per child for eligible medical services, treatment therapies, items and equipment.