Resource Directory /

Chicago Home Care Resources

  • United Leukodystrophy Foundation

    The United Leukodystrophy Foundation (ULF) is a nonprofit providing leukodystrophy patients and their families with support and resources. ULF can help families with finding medical care, genetic counseling, networking and financial assistance. It also provides funding for medical research each year.

    ULF is based in Dekalb, Ill. Its Services and supports also include:

  • Autism Speaks Transition to Adulthood Resources

    Autism Speaks offers autistic teens and their families inspiration, information, toolkits and support for creating a roadmap for their transition to adulthood journey. Its transition planning tools for individuals and their families include:

  • Living Fully at Home, LLC

    Living Fully at Home, LLC, provides resources, home safety evaluations and other services in the Chicagoland area to help people of all ages with disabilities and other challenges live safely in their home. Help includes both in-person and Health Insurance Portability and Accountability Act (HIPAA)-compliant telehealth services.

    Living Fully at Home, LLC, can help families and individuals of all ages who are:

    • Managing chronic conditions or disability
    • Returning from the hospital
    • Recovering from an injury
    • Facing challenges as they age
    • Serving as a caregiver

  • Unique Sweets

    Unique Sweets provides delicious treats and a safe space for people with autism and other disabilities to participate in life skills training. Team members participate in event planning, purchasing supplies, baking, decorating and packaging and receive a stipend to cover their expenses to get to the kitchen. Unique Sweets also hosts social events throughout the year to foster peer-relationships, social skills and community support.

    Unique Sweets also offers:

    • Life skills (virtual or in-person) peer-led cooking classes
    • Social events and an annual Party With a Purpose
    • Inclusive workshops, information sessions and social events with other organizations
    • Referrals to other programs and services as needed

  • Lifespan Disability Clinic in Chicago

     UI Health’s Lifespan Disability Clinic provides one-stop, comprehensive primary care for children and adults with intellectual and developmental disabilities. The Lifespan Disability Clinic is a welcoming space that aims to collaborate with each individual to achieve their personal goals, such as obtaining appropriate accommodations, coordinating care and supporting the transition to adulthood.

    The Lifespan Disability Clinic has two locations. Services include:

    • Primary care (routine health exams)
    • Support for the transition to adulthood
    • Care coordination
    • Education and resources

  • Autism Eats

    Autism Eats provides autism-friendly non-judgmental environments for family dining, socializing and connecting with others who share similar joys and challenges. Autism Eats hosts dinners and events year-round. The also provide comprehensive autism awareness training and certification for restaurant management and staff.

    Autism Eats dinner parties:

    • Take place in private rooms of restaurants or function facilities.
    • Serve food buffet or family style so there is no waiting.
    • Adjust music and lighting to accommodate those with sensory sensitivity.

  • Chicago Adaptive Sports

    Chicago Adaptive Sports provides programming, support and advocacy for individuals with physical and visual disabilities of all ages and backgrounds. The organization adapts programming to meet the needs of individuals who use manual or power wheelchairs or have other ambulatory disabilities such as amputation, cerebral palsy, spina bifida, stroke and other spinal cord or orthopedic impairments. No prior experience is necessary to participate. Financial assistance is available. Participants will not be turned away due to their ability to pay.

    Chicago Adaptive Sports programs include:

  • Charting the LifeCourse Nexus Training and Technical Resource Center

    Charting the LifeCourse Nexus or LifeCourse Nexus framework was developed by families to help individuals with disabilities at any age or stage of life and their families develop a vision for a good life. LifeCourse Nexus provides free infographics, YouTube videos and step-by-step tip sheets to help people of all ages and abilities with identifying their dreams and desires, thinking about what they need to know and do, identifying how to find or develop supports, and discovering what it takes to live the lives they want to live.

    The LifeCourse Nexus Library features a wide range of downloadable materials to help with the transition from school to community, including:

    • Person-centered tools for exploring your desires and unique needs
    • The family perspective booklet and tip sheets
    • Kits (The Life Domains) focusing on life stages and exploring employment, healthy living, housing options and other areas
    • Videos and step-by-step tip sheets on using the Integrated Supports Star tools to bring everything together

  • Every Step of the Way Resource Center for Adults with Intellectual Disabilities

    Every Step of the Way (ESW) takes a hands-on, person-centered approach to providing support, networking opportunities and resources for individuals with mild to profound intellectual disabilities ages 20 and up and their parents/caregivers. ESW seeks to create a community where parents/caregivers in Chicago can:

    • Find resources for recreation, education, health (mental and physical), social and daily living skills, and behavioral intervention services
    • Network with each other
    • Brainstorm and collaborate to create programming and develop opportunities for their adult children
    • Advocate and network to accommodate the needs of their adult child and the adult children in the ESW community