Chicago Home Care Resources
HealthyChildren.org’s “Childhood Grief: When to Seek Additional Help”
Many children experience the death of a close family member or friend at some point during their childhood. The American Academy of Pediatrics’ website HealthyChildren.org provides information for parents about childhood grief, ways to help your child, and where to find support.
The information includes:
- Signs your child may need more help
- Important information about tweens
- Resources for more information
Health Resources and Services Administration (HRSA) COVID-19 Provider Locator
The Health Resources and Services Administration (HRSA) provides a Find a Health Center locator tool to help you find health centers and COVID-19 services in your community. The tool is available in many languages.
Resource Guide “When a Child Dies: Planning Acts of Love and Legacy”
The loss of a child is never easy. The Funeral Service Foundation’s free guide “When a Child Dies: Planning Acts of Love & Legacy” offers guidance, support and inspiration to families saying goodbye. Topics include:
- The funeral planning process
- Talking with children about death
- Ideas for planning a meaningful tribute
- Carrying forward and dealing with your grief
The Funeral Service Foundation’s “Youth and Funerals” page provides free ebooks, printed booklets and webinars to help families discuss death and funerals with youth. The information can help families understand the role funerals play in the lives of children and youth, and how including youth in remembering loved ones can be healing and empowering.
Materials in English and Spanish include:
- Age-appropriate language and advice on discussing death and funerals with youth
- Suggestions for preparing and involving youth in remembering or memorializing a loved one
Pediatric Tracheostomy Tube Emergency Management Video
In this video, nurses from Ann and Robert H. Lurie Children’s Hospital of Chicago describe and demonstrate emergency management for pediatric patients with tracheostomy (trach) tubes. The video covers:
- Prevention and assessment of emergency situations
- How to manage a mucous plug
- How to replace a trach tube that has become dislodged
- What to do if the trach tube is difficult to replace
- When to provide manual ventilation using bag to trach tube, bag and mask to mouth, and mouth to mouth
Sibling Grief and Bereavement Toolkit for Children and Teens
The Pediatric Palliative Care Coalition’s (PPCC) Sibling Grief and Bereavement Toolkit aims to address the needs and concerns of children and teens who have experienced the death of their sibling with medical complexities. The toolkit provides information to help adults understand how children and teens may process their grief and how to provide comfort to help them heal.
The toolkit can help with:
- The many feelings siblings might experience
- Therapeutic activities families can do together
- More resources for encouraging and guiding conversations
DSCC’s IMPACT Guide for Participants and Families
The Division of Specialized Care for Children (DSCC) has created an IMPACT Guide for Participants and Families. The guide provides helpful information for our participants and families using the Illinois Medicaid Program Advanced Cloud Technology (IMPACT) system. It includes:
- Contacts for assistance
- A list of helpful terms
- Information on All Kids/Medicaid transportation benefits
- How to enroll in IMPACT (as a Private Transportation Provider)
- Information on pre-approval and submitting a claim
For more information, visit the IMPACT Information and Resources page on our website.
Exercise Tips and Tools for Children
These tips sheets provide resources for helping children with disabilities of all ages and abilities exercise and stay active.
Illinois Disability Benefits 101
Illinois Disability Benefits 101 is a free, user-friendly, Illinois-specific website that helps work through the myths and confusion of Social Security benefits, health care, employment and more. It is a one-stop shop for information, resources, and tools to motivate and support employment and community inclusion for individuals with disabilities, their families and professionals.
Urban Autism Solutions (UAS) is a Chicago non-profit organization serving young adults with autism and other learning differences. Their person-centered programming focuses on building life skills, community integration, social interaction, an integrated community life, and social and vocational opportunities. UAS programs include:
- The West Side Transition Academy
- Growing Solutions Farm
- Life Lab
- Network 1212 social meet-ups and outings for young adults