Champaign Resources
The Kids Equipment Network (TKEN) is a non-profit organization connecting children with disabilities with new and gently-used durable, adaptive equipment at no cost. Illinois families with children from birth to 21 can fill out an application to request equipment. TKEN then seeks equipment matching the child’s needs. The family is invited to a fitting clinic when the equipment becomes available.
Volunteers provide free monthly clinics for custom-fitting equipment in Chicago and the suburbs. Families can request items including:
- Strollers
- Wheelchairs
- Bath and toilet systems
- Crutches
- Canes and more
The Ariana Rye Foundation helps children up to age 18 with developmental disabilities and complex medical medical needs get equipment to foster their social, mental and physical development. Families in need, from anywhere in the United States, can apply for help. Requests for equipment can include feeding or bath chairs, car seats, adaptive strollers, mats, wedges, specialty swings, sensory equipment and more.
The application, requirements for applying, and the annual application deadline are posted on its website.
Families can apply once per year. The one-time equipment grant provides up to $1000 per child.
Brave Health Online Mental Health Services
Brave Health provides online mental health services and accepts more than 200 insurance plans, including Medicaid and Medicare. Physicians, nurse practitioners, therapists and counselors with specialized training in mental health care provide care virtually in English and Spanish. Services include one-on-one and group therapy sessions, medication management, specialized programs and help managing complex medical and behavioral health challenges for adults and youth ages 13 and up.
Brave Health has a closed-loop referral process and also accepts patients who do not have insurance. Patients, referrers and providers can visit Brave Health’s website for information on how to get started and other resources.
National PTA Special Education Toolkit for Parents and Caregivers
National PTA promotes family-school partnerships and building community at the local, state and national levels. Its website offers a variety of family-focused resources, including a Special Education toolkit, Parents’ Guide to Student Success, College and Career Readiness resources and more.
United Leukodystrophy Foundation
The United Leukodystrophy Foundation (ULF) is a nonprofit providing leukodystrophy patients and their families with support and resources. ULF can help families with finding medical care, genetic counseling, networking and financial assistance. It also provides funding for medical research each year.
ULF is based in Dekalb, Ill. Its Services and supports also include:
- Leukodystrophy frequently-asked questions and a glossary of terms
- Clinical trials
- Virtual caregiver support groups
- The Hultman Memorial Fund for families facing financial hardship
- Webinars and an annual family conference
Autism Speaks Transition to Adulthood Resources
Autism Speaks offers autistic teens and their families inspiration, information, toolkits and support for creating a roadmap for their transition to adulthood journey. Its transition planning tools for individuals and their families include:
- The Transition Toolkit covering self-advocacy skills, legal matters, housing, employment options and more.
- An IEP Transition Plan Checklist to help students with autism and their parents/caregivers create and review an Individualized Education Program (IEP) transition plan.
- The Workplace Inclusion Now (WIN) free training course “Supporting Your Family Member in Employment” with information and insights into planning for employment.
- The Healthcare Transition Roadmap for help moving from a pediatrician to a primary care physician. The guide is aimed at individuals ages 12 to 21 but includes information for individuals with autism of all ages, such as finding specialists, understanding legal rights, self-advocacy tips and special guidance for LGBTQ+.
Charting the LifeCourse Nexus Training and Technical Resource Center
Charting the LifeCourse Nexus or LifeCourse Nexus framework was developed by families to help individuals with disabilities at any age or stage of life and their families develop a vision for a good life. LifeCourse Nexus provides free infographics, YouTube videos and step-by-step tip sheets to help people of all ages and abilities with identifying their dreams and desires, thinking about what they need to know and do, identifying how to find or develop supports, and discovering what it takes to live the lives they want to live.
The LifeCourse Nexus Library features a wide range of downloadable materials to help with the transition from school to community, including:
- Person-centered tools for exploring your desires and unique needs
- The family perspective booklet and tip sheets
- Kits (The Life Domains) focusing on life stages and exploring employment, healthy living, housing options and other areas
- Videos and step-by-step tip sheets on using the Integrated Supports Star tools to bring everything together
National Alliance for Caregiving
The National Alliance for Caregiving (NAC) is a non-profit coalition of national organizations providing research, advocacy and innovation to make life better for family caregivers. The Alliance’s research, programs and resources include:
- Guidebooks including its Circle of Care Guidebook for Caregivers of Children with Rare and/or Serious Illnesses
- Stories from caregivers nationwide
- Research, data and reports focusing on different aspects of caregivers
- Advocacy and policy initiatives
Able Flight Aviation Scholarships for People with Disabilities
Able Flight is a nonprofit organization offering scholarship opportunities for flight and aviation career training for people ages 18 and up with physical disabilities. Past recipients have included wheelchair users, wounded veterans, and people with a variety of congenital birth defects or who have lost limbs. You can learn more about eligibility requirements, application deadlines, what scholarships will cover and more by reading Able Flight’s frequently asked questions.
Able Flight also offers three different scholarships programs:
- The Full Flight Training Scholarship for people who wish to earn a Sport Pilot certificate.
- The Return to Flight Scholarship for someone who becomes disabled after already having earned a pilot’s license.
- The Career Training Scholarship allows an individual to earn an FAA-issued Repairman Certificate (Light Sport Aircraft) with Maintenance Rating, an FAA Dispatcher License, or for training to qualify for a career in the use of drones for commercial purposes. This scholarship can pay for academic expenses for an aviation career with committee approval.
Summer EBT “SUN Bucks” and Summer Meal Sites
Summer Electronic Benefit Transfer (EBT) or SUN Bucks is a nutrition program from the U.S. Department of Agriculture to help families buy food for their school-aged children during the summer. Illinois families will receive a one-time benefit of $120 for each eligible child to purchase groceries for their household. The Illinois Department of Human Services (IDHS) will provide EBT benefits at the end of August or beginning of September 2024.
See the Summer EBT/SUN Bucks Fact Sheet in English or la EBT de verano/SUN Bucks Fact Sheet in Spanish to learn more.
Your school can help you with basic questions about Summer EBT. Households should visit the IDHS Summer EBT webpage for more information.
The Illinois State Board of Education also partners with the Illinois Hunger Coalition and No Kid Hungry to operate the Summer Food Service Program hotline and text service. To find summer meal sites:
- Call (800) 359-2163
- Text “FOOD” or “COMIDA” to 304-304
- View the USDA Summer Meals for Kids Site Finder or Summer Meals Find Food Map to find nearby meal sites open to all children and youth ages 18 and younger