Webinar – “Walk in Our Shoes: The Experience of Rare Disease Patients”
A discussion with rare disease patients from underserved populations for patients, caregivers, advocates, researchers and healthcare providers
The National Organization for Rare Disorders (NORD®) and the Rare Disease Diversity Coalition (RDDC) will host “Walk in Our Shoes: The Experience of Rare Disease Patients” on April 28 from 1 to 2 p.m.
This webinar puts the focus on equity in rare disease healthcare.
Join this discussion with rare disease patients from underserved populations to learn about their experiences living with rare disorders and their perceptions of diversity, equity and inclusion during the healthcare journey.
Members of the public and the rare disease community are encouraged to participate.