Events /

Webinar – Rare Disease Day Event “Rare Teen Parents”


Thursday, February 29, 2024    
6:00 pm - 7:00 pm

Event Type

Free webinar in honor of Rare Disease Day providing insight and tools for parents and caregivers of teens living with rare diseases

Join the National Organization of Rare Disorders (NORD) and the Usher Syndrome Society for tips on supporting your teen’s mental health on Feb. 29 from 6 to 7 p.m.

This one-hour virtual event in honor of Rare Disease Day will feature psychotherapist, author and Usher syndrome advocate Rebecca Alexander.

Alexander’s presentation will offer:

  • Valuable insights on grief, boundaries and acceptance
  • Mental health concepts and tools for effectively supporting your adolescent
  • Mindfulness exercises and tips for nurturing caregivers’ well-being
  • A question-and-answer session

Parents and caregivers of adolescents and teens living with rare diseases will gain practical tools and leave feeling empowered and recharged.

Multi-language closed captioning and live American Sign Language (ASL) interpretation will be available.

Register for the Rare Teen Parents webinar. This webinar will be recorded.