Events /

Webinar – “Pediatric Complex Care Seminar Session 6: Disorders of Tone”


Thursday, February 10, 2022    
12:00 pm - 1:00 pm

Event Type


A free webinar series featuring clinical and caregiver experts for anyone who is invested in building a community of practice for the care of children with neurodisability and medical complexity

The Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities and Disabilities (C6), funded by The Lucile Packard Foundation for Children’s Health, is hosting “Disorders of Tone” on Feb. 10 from 12 – 1 p.m.

This is part six of a 10-part seminar series that builds on an international study, completed in 2020, designed to highlight key clinical research questions for the care of children with neurodisability and medical complexity (CMC).

Each one-hour seminar includes an overview of the topic and a conversation on shared decision-making in pediatric complex care with a panel of national clinical and caregiver experts. The goal is to build a community of practice.  Family caregivers, youth, health care professionals, researchers, policymakers and anyone invested in advancing clinical care in CMC are encouraged to ask questions, share insights and engage with the panel.

This session features Sarah Perkins, a family leader at Boston Childen’s Hospital who has also spent her life navigating the healthcare system as a patient and has seen the benefits of family and professional partnerships firsthand.

The series is led by:

  • Dr. Eyal Cohen and Dr. Catherine Diskin, complex care pediatricians, Hospital for Sick Children (SickKids) in Toronto, Canada
  • Dr. Rishi Agrawal, Lurie Children’s Hospital of Chicago
  • Nora Wells, Cara Coleman and Kate Robinson, Family Voices representatives

Register online to attend and learn more about the presenters.