Understanding the Lived Experience of Siblings of Children with Severe Neurological Impairment
Thursday, June 23, 2022, 2:00 pm - 3:00 pm
A webinar to help better understand the impact on siblings of children with severe neurological impairment (SNI)
Join the Pediatric Palliative Care Webinar Series 2022 for “Understanding the Lived Experience of Siblings of Children with Severe Neurological Impairment” on June 23 from 2 to 3 p.m.
The Pediatric Palliative Care Webinar Series is a collaboration between Children’s Hospice & Palliative Care Coalition of California, Pennsylvania’s Pediatric Palliative Care Coalition (PPCC) and the Greater Illinois Pediatric Palliative Care Coalition (GIPPCC).
Qualitative research involves collecting and analyzing non-numerical data (e.g., text, video, or audio) to understand concepts, opinions or experiences. It can be used to gather in-depth insights into a problem or to generate new ideas for research.
Presenter Danielle Jonas, MSW, LCSW, will present the results of a phenomenological qualitative study using photo voice to interview sibling/parent groups to better understand the lived experience of being a sibling to a child with severe neurological impairment (SNI).
Jonas will cover the different aspects of being a sibling to a child with SNI, including:
- The components of the lived experience
- How to identify examples of meaning-making activities and experiences
- Strategies for psychosocial clinicians to support siblings of children with SNI
The discussion will focus on the key findings of the study and takeaway points for providers in regards to how to best meet the needs of these siblings.
Jonas is a social work researcher focused on pediatric palliative care and specifically the care of children with severe neurologic impairment and their families.
The webinar is $30 per person without continuing education credit (CE). Group rates are also available.