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Rare Caregiver Respite Program

The National Organization for Rare Disorders’ (NORD) Respite Program is for caregivers (parent, spouse, family member or significant other) of a child or adult diagnosed with a rare disorder.

The Respite Program provides financial assistance to enable the caregiver a break to attend a conference, event or simply have an afternoon or evening away from caregiving. Financial assistance will be granted up to $500 annually for those who qualify. Awards may be spread throughout the year or in a single-use.

For more information about this program, contact NORD at (203) 616-4328 or email