Rare Caregiver Respite Program

The National Organization for Rare Disorders’ (NORD) Respite Program is for caregivers (parents, spouses, family members, or significant others) of a child or adult diagnosed with a rare disorder. The program provides financial assistance to allow caregivers a break to attend a conference, an event, or have an afternoon or evening away from caregiving.

The Respite Program awards are granted to eligible individuals on a first-come, first-served basis. There is no fee to apply.

For more information about this program, contact NORD at (203) 616-4328 or email CaregiverRespite@rarediseases.org.