Preparing For College When You Have Congenital Heart Disease
Going to college is an exciting time filled with new friends and experiences. When you have congenital heart disease (CHD), it can be overwhelming or tempting to put your care on the back burner. It’s very important that you stay in care and are as prepared as possible.
The Adult Congenital Heart Association provides this resource with tips to help you maintain good health while you further your education.
Job Accommodation Network
The Job Accommodation Network (JAN) provides free consulting services for all employees, regardless of the condition. Services include one-on-one consultation about all aspects of job accommodations, including the accommodation process, accommodation ideas, product vendors, referral to other resources and Americans With Disabilities Act (ADA) compliance assistance.
Congenital Heart Defects (CHDs) Fact Sheets and Articles
Congenital heart defects (CHDs) are conditions that are present at birth and can affect the structure of a baby’s heart and the way it works. The Centers for Disease Control and Prevention (CDC) provides fact sheets, articles, patient stories and more to help you understand CHDs and their affect across the lifespan.
Congenital Heart Defects Information
The American Heart Association provides information and resources on congenital heart defects (CHDs).
Information is available in English and Spanish.
When Your Child Has a Heart Defect: Planning Ahead for Lifelong Heart Health
Children with congenital heart defects and disease (CHD) will need lifelong care from congenital heart experts. The Adult Congenital Heart Association provides this brochure to help parents of children born with CHDs support their child’s lifelong heart health.
Mended Little HeartGuide: A Parent and Caregiver Resource Guide for Families Living with Congenital Heart Disease
Mended Little Hearts and St. Jude Medical partnered to create this digital resource guide for parents and caregivers of children with congenital heart disease or defects (CHD).
Medical professionals and parents worked together on this guide to provide accurate and honest information that addresses the tough feelings, questions and concerns parents and caregivers may have.
Go to The Mended Hearts, Inc. HeartGuides page and scroll down to see the Mended Little HeartGuide in English and Spanish.
Heart Conditions and Children
A number of heart conditions can affect children. Some are structural abnormalities they are born with. Others deal with the electrical system that controls the heartbeat.
HealthyChildren.org, the official parenting site of the American Academy of Pediatrics, provides numerous articles and information about heart conditions, including common heart defects in children, the challenges faced by parents of children with congenital heart disease, dental care for children with heart conditions and more.
CHD Support Network
The American Heart Association’s Support Network, in partnership with The Children’s Heart Foundation, provides a Congenital Heart Defect (CHD) Support Network for parents of young children diagnosed with CHDs or adults living with a CHD.
Center of Concern
The Center of Concern is a non-profit social service agency providing housing solutions, support services and counselors for individuals with disabilities, older adults and others in need in Cook County, enabling them to live safely and independently.
If you have any questions, please call the Center of Concern at (847) 823-0453 or email concern@centerofconcern.org.
My Pantry Express
Northern Illinois Food Bank has launched My Pantry Express, an online source for groceries. The program allows families in need of food assistance to choose specific grocery items and pick them up at a preferred participating location.
Pickup locations are available in the following counties: DeKalb, DuPage, Lake, Will, Winnebago.

