Pacer Center provides this handout of tips to help young adults with special healthcare needs plan for housing and independent living as they transition to adulthood.

Going to college is an exciting time filled with new friends and experiences. When you have congenital heart disease (CHD), it can be overwhelming or tempting to put your care on the back burner. It’s very important that you stay in care and are as prepared as possible.

The Adult Congenital Heart Association provides this resource with tips to help you maintain good health while you further your education.

The Job Accommodation Network (JAN) provides free consulting services for all employees, regardless of the condition. Services include one-on-one consultation about all aspects of job accommodations, including the accommodation process, accommodation ideas, product vendors, referral to other resources and Americans With Disabilities Act (ADA) compliance assistance.

Congenital heart defects (CHDs) are conditions that are present at birth and can affect the structure of a baby’s heart and the way it works. The Centers for Disease Control and Prevention (CDC) provides fact sheets, articles, patient stories and more to help you understand CHDs and their affect across the lifespan.

The American Heart Association provides information and resources on congenital heart defects (CHDs).

Information is available in English and Spanish.

Children with congenital heart defects and disease (CHD) will need lifelong care from congenital heart experts. The Adult Congenital Heart Association provides this brochure to help parents of children born with CHDs support their child’s lifelong heart health.

“When Your Child Has a Heart Defect” brochure in English 

Cuando su Niño(a) Tiene Un Defecto de Corazón

Mended Little Hearts and St. Jude Medical partnered to create this digital resource guide for parents and caregivers of children with congenital heart disease or defects (CHD).

Medical professionals and parents worked together on this guide to provide accurate and honest information that addresses the tough feelings, questions and concerns parents and caregivers may have.

Go to The Mended Hearts, Inc. HeartGuides page and scroll down to see the Mended Little HeartGuide in English and Spanish.

A number of heart conditions can affect children. Some are structural abnormalities they are born with. Others deal with the electrical system that controls the heartbeat.

HealthyChildren.org, the official parenting site of the American Academy of Pediatrics, provides numerous articles and information about heart conditions, including common heart defects in children, the challenges faced by parents of children with congenital heart disease, dental care for children with heart conditions and more.

The American Heart Association’s Support Network, in partnership with The Children’s Heart Foundation, provides a Congenital Heart Defect (CHD) Support Network for parents of young children diagnosed with CHDs or adults living with a CHD.

Exceptional Children’s Charities provides resources to benefit exceptional children with special needs in Chicago’s Southland.

The charity can provide financial support to supply wheelchairs, stand-up chairs, medical supplies, special learning tools and adaptive technology devices to foster learning and improve day-to-day life. Assistance can also be provided for medical and dental bills that are not covered by insurance or public aid.