Hope Wins

Hope WINS (What I Need to Succeed) is a family-driven organization focused on educating and equipping families with the tools they need to create healthy relationships and nurturing environments where families can flourish. Programs include an around-the-clock parent support line, a family connection night, a parent support group, summer and pop-up camps, and resources for families in northwest Illinois.

Hope WINS programs include:

The Hope WINS Support Line for parents and caregivers is open 24 hours a day for anyone in need of help through any crisis, big or small. Call or text (877) 221-HOPE (221-4673).

For questions, contact Hope WINS at hopewins20237@gmail.com or (815) 990-1907.

Children’s Theatre of Elgin and Fox Valley Theatre Company

Children’s Theatre of Elgin and Fox Valley Theatre Company (CTE/FVTC) is a not-for-profit based in Elgin that offers all individuals an opportunity to learn, grow and enrich their lives through theatre. It provides fun and exciting programs that offer children, youth and young adults an affordable opportunity to experience the performing arts, either as participants or audience members. CTE/FVTC also provides a variety of summer camps and accessible, sensory-friendly and American Sign Language-interpreted performances throughout the year.

See CTE/FVTC’s Frequently Asked Questions page for more details.

If you have questions, please email office@cteelgin.com or call (847) 214-7152.

The Dysautonomia Project

The Dysautonomia Project (TDP) is a non-profit, collaborative effort of volunteer healthcare providers, patients and community leaders working together to bridge the gap between what autonomic specialists know and what community-based providers and patients need to know. TDP provides a wide variety of help and information for patients and clinicians, including:

Brenda Holzer Memorial Foundation

The Brenda Holzer Memorial Foundation is a nonprofit organization that works directly with families, school districts and other organizations to help children with disabilities. It supports children with disabilities by improving accessibility, advocating for understanding and lending a loving hand to those in need in Kendall County and the surrounding areas.

You can print the Brenda Holzer Memorial Foundation Application for Support or contact the foundation using the Contact Us form.

Resources for Grandparents Raising Grandchildren

The Illinois Department of Human Services provides a list of resources for grandparents raising grandchildren.  The list of organizations providing help and information includes:

Misericordia

Misericordia is a not-for-profit corporation providing a community of support, employment and living options for people with mild to profound developmental and physical disabilities. It currently provides residential services for more than 600 children and adults on its 37-acre Chicago campus and in the community. Programs focus on helping residents live as independently as possible and explore their interests, including:

  • Building life and employment skills
  • Art classes and studio time
  • Gardening and greenhouse management
  • Recreational opportunities and more

Misericordia residential settings include:

  • CILAs (Community Integrated Living Arrangements for small groups in neighborhood homes outside Misericordia’s main campus)
  • On-campus apartments
  • Group homes on campus
  • A skilled nursing residence

For questions, please see Misericordia’s Contact Us page or call  (773) 973-6300.

Camp Riley in Martinsville, Ind.

Camp Riley in Martinsville, Ind., empowers children with physical and developmental disabilities through life-changing week-long camp experiences tailored to their individual needs. Campers with physical and developmental disabilities, Down syndrome, craniofacial anomalies, sickle cell anemia, and other blood disorders can have fun while shattering limitations, making new friends and increasing their independence.

Camp Riley takes place at Indiana University’s Outdoor Center, Bradford Woods, with the support of Riley Children’s Foundation.  Riley Hospital for Children at IU Health provides 24-hour medical coverage for Camp Riley, including medical and nursing directors, resident physicians, nurses and a pharmacy team.

Camp Riley hosts eight camps each summer:

  • Camp Riley 1 – Campers 8 to18 years old with physical disabilities needing a 1-to-1 ratio
  • Camp Riley 2 – Campers 8 to18 years old with physical disabilities needing a 1-to-2  ratio
  • Camp Riley 3 – Campers 8 to18 years old with physical disabilities needing a 1-to-3 ratio
  • Camp Riley+ – Adults 18 and over with a physical disability needing a 1-to-1 ratio
  • Camp About Face – Campers 8 to18 years old with craniofacial anomalies
  • Camp Hi-Lite – Campers 8 to 22 years old with Down syndrome needing a 1-to-2 ratio
  • Camp Independence – Campers 8 to 18 years old with sickle cell anemia and other blood disorders needing a 1-to-5 ratio
  • Camp Kan Du – Campers 8 to 18 years old with a cognitive level ranging from birth to 48 months and with physical disabilities needing a 2-to-1 ratio

Apply for Camp Riley online.

Camp Riley also includes a “Beyond the Woods” mentor program for teens ages 14-18 with a physical disability. Campers are matched with adult mentors who have been through similar life experiences and can act as a source of empowerment and a resource for campers on a variety of topics, including personal challenges, next steps in education and career, and more. For more information about the Beyond the Woods program, please call (765) 342-2915.

For more information, please contact therapy@iu.edu or call (765) 349-5122.

Financial Assistance Resources For Microtia and Atresia Surgery

The Ear Community provides a list of charities, foundations and organizations that offer financial assistance to families with children who need help with surgery to reconstruct the outer ear (microtia) and open the ear canal (atresia) to improve hearing.

More Than Project

The More Than Project is a non-profit that supports special needs families through resources for caregivers, siblings and diagnoses. It aims to empower the entire family unit with understanding, community and compassion. It offers help and support that includes:

  • Two larger-scale, in-person retreats a year where caregivers can relax and get a much-needed respite
  • The More Than A Sibling program offering grants to siblings of children with disabilities
  • The More Than A Teacher program providing sensory rooms to schools, creating more inclusive environments for students

For questions, contact the More Than Project online.

Central Illinois Transition Planning Committee (TPC) Serving Peoria, Tazewell, Mason and Woodford Counties

The Central Illinois Transition Planning Committee (Central Illinois TPC) serves Peoria, Tazewell, Mason and Woodford counties. It helps connect parents, teachers, students and community members with resources to support students with disabilities in transitioning from secondary education to adult life.

Central Illinois TPC’s website provides a wide variety of information, including transition-to-adulthood community resources and a checklist, upcoming events, post-secondary college and training options, transportation resources for people with disabilities, and more. For more information, use the Central Illinois TPC’s Contact Us form.