Parent & Educator Partnership

Lists many educational and other resources for parents as well as a mentoring program.

Illinois Network of Centers for Independent Living

The Illinois Network of Centers for Independent Living (INCIL) supports 22 Centers for Independent Living (CILs) across the state. The goal of these non-profit organizations is to provide community-based, non-residential support for people with disabilities so they may achieve independence in every aspect of their lives, including home, work and school. 

INCIL also oversees the Home Modification Program that provides funding for improvements to make eligible homes and rental properties more accessible.

Attention Deficit Disorder Resources

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) is a national non-profit organization that helps people with ADD/ADHD achieve their potential through education, support & networking.

Sibling Support Project

The Sibling Support Project is a  national program dedicated to the lifelong and ever-changing concerns of millions of brothers and sisters of people with special health, developmental and mental health needs.

The project offers support, resources, opportunities to connect with other siblings and “Sibshops” for school-age brothers and sisters of kids with special needs.

Chicago Dental Society

Amtryke

AMBUCS is a non-profit organization that makes and gives away therapeutic tricycles called Amtrykes. For parents, the Amtryke fills the need of every child to have a bike—just like their siblings and friends. Many riders not previously considered capable of riding a bike will be successful riding an Amtryke. Amtrykes are designed to look like bikes, not medical equipment, and to be age-appropriate.

Information about how to either purchase or request a donated Amtryke, visit https://ambucs.org/riders/parents/.

National Resource Center for Patient/Family-Centered Medical Home

Family members are the primary caregivers and support in a child’s life. Practices and healthcare organizations that are truly family-centered provide care in equal partnership with families, caregivers and children.

This page for families and caregivers from the National Resource Center for Patient/Family-Centered Medical Home includes tools, resources and links to information that will assist families in successfully partnering with their child’s medical home. It includes templates for how to build a care plan for your child.

Region 4 Genetics

Learn about the newborn screening information in Illinois and bordering states in Region 4.

Starbright World

This site has been created for teens with chronic and life threatening medical conditions, and their siblings. The goal of the site is to help teens connect with other youth like themselves.

Brain Injury Association of Illinois

The Brain Association of Illinois is a not-for-profit, statewide membership organization ocmprised of people with brain injuries, family members, friends and professionals.