The Humanitarian Foundation Grottoes International program helps cover the costs of dental treatment, including hospital and anesthesia costs, for children with Cerebral Palsy, Mental Retardation, Organ Transplants or Muscular Dystrophy and related neuromuscular disorders.

This organization is committed to protecting the rights of children, people with disabilities, & low income adults.

The website includes information about the condition Maple Syrup Urine Disease.

This site has the special state health care programs listed and links to them. It is a good site when you are searching for a state medical program.

Supports early and continuous screening and works to ensure newborns with hearing losses are identified.

The mission of the Institute (NIDCR) is to improve oral, dental and craniofacial health through research, research training, and the dissemination of health information.

Supports family participation and satisfaction and strives to increase the capacity of health and mental health programs.

The Catalyst Center works with a broad range of partners to improve health care insurance coverage and address complex health care financing for Children and Youth with Special Health Care Needs (CYSHCN).

The PKU Organization of Illinois provides resources and support to teens, adults and families with PKU and 16 allied disorders.

Their website includes information about understanding and managing phenylketonuria (PKU), diet, local resources, events, what to expect at different life stages and a PKU binder toolkit.

The National Phenylketonuria (PKU) Alliance (NPKUA) provides help with understanding and managing PKU from diagnosis to adulthood. NPKUA resources include a New Parent Toolkit, a downloadable PKU Binder, and information on the latest treatments, insurance coverage and terms, a mentor program, cooking and food, research grants and more.

NPKUA hosts “Community Call.” These monthly peer support groups offer a place for sharing and connecting with others who understand the unique challenges of living with PKU. Please see the events calendar on NPKUA’s website for meeting times and other details for each of the following groups:

• Caregivers of children ages 0 to 3
• Caregivers of children ages 3 to 12
• Caregivers of teens ages 13 to 17
• Adults with PKU ages 18+
• Adults with PKU ages 40+