Got Transition
Got Transition aims to help youth and young adults move from pediatric to adult health care. Its website includes frequently asked questions and resources for youth and young adults as well as parents and caregivers.
The site also includes an animated video “What is Health Care Transition? HCT 101” for youth, young adults and families.
Almost Home Kids
Almost Home Kids provides a bridge from hospital to home through an innovative community-based care system for children with medical complexities. It responds to the needs of families, trains caregivers, offers respite care, advocates for accessibility and inclusion and educates healthcare professionals.
Almost Home Kids offers transitional, respite and respite transportation care. It has locations in Chicago, Naperville and Peoria.
Maryville Children’s Healthcare Center
Maryville Children’s Healthcare Center provides care to children with complex medical needs who are not yet able to go home. They also provide training for caregivers enabling them to care for the child when he/she transitions home. Maryville offers both transitional and respite care.
DSCC’s Adult Living Arrangements/Self-Reliant Skills Checklist
There are many activities that youth with specialized healthcare needs can practice doing to become more self-reliant and ready for their desired adult living arrangements. The Division of Specialized Care for Children (DSCC) created this Adult Living Arrangements/Self-Reliant Skills Checklist to help youth and their families learn about and build important skills and abilities in the areas of independence, nutrition, personal care and hygiene, and mobility/exercise. Some of these activities may not apply to everyone.
DSCC’s Adult Living Arrangements/Self-Reliant Skills Checklist in English
DSCC’s Adult Living Arrangements/Self-Reliant Skills Checklist in Spanish
DSCC’s Skills Checklist – Social
The Division of Specialized Care for Children (DSCC) created this checklist to help youth gain important social skills and abilities needed to reach their highest level of independence. Youth can use this checklist to identify and build skills in areas such as communication, pet care, safety, socialization and recreation. Some of these activities may not apply to everyone.
DSCC’s Travel Safety Tip Sheet
The Division of Specialized Care for Children (DSCC) created this tip sheet for youth with special healthcare needs and their families to encourage travel safety. The tip sheet also provides information about adaptive driver programs and possible resources for vehicle adaptations.
DSCC’s Drugs and Smoking Tip Sheet for Teens
The Division of Specialized Care for Children (DSCC) created this tip sheet to help youth with special healthcare needs understand the importance of taking care of their bodies and knowing the facts about using tobacco, e-cigarettes, vaping, drugs and alcohol.
Medications, tobacco, street drugs, and alcohol are all chemicals that cause your body to react in different ways. Knowing what you are putting into your body and learning to say “no” to peer pressure are important steps in deciding what is right for you.
“It’s Your Body – Know What You Are Putting Into It” tip sheet in English
“It’s Your Body – Know What You Are Putting Into It” tip sheet in Spanish
DSCC’s Importance of Friendships Tip Sheet
The Division of Specialized Care for Children (DSCC) created this tip sheet to help youth with special healthcare needs learn about the importance of making friends, sharing ideas and interests, and respecting themselves and others.