Attention Deficit Disorder Resources

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) is a national non-profit organization that helps people with ADD/ADHD achieve their potential through education, support & networking.

Sibling Support Project

The Sibling Support Project is a  national program dedicated to the lifelong and ever-changing concerns of millions of brothers and sisters of people with special health, developmental and mental health needs.

The project offers support, resources, opportunities to connect with other siblings and “Sibshops” for school-age brothers and sisters of kids with special needs.

Chicago Dental Society

Amtryke

AMBUCS is a non-profit organization that makes and gives away therapeutic tricycles called Amtrykes. For parents, the Amtryke fills the need of every child to have a bike—just like their siblings and friends. Many riders not previously considered capable of riding a bike will be successful riding an Amtryke. Amtrykes are designed to look like bikes, not medical equipment, and to be age-appropriate.

Information about how to either purchase or request a donated Amtryke, visit https://ambucs.org/riders/parents/.

National Resource Center for Patient/Family-Centered Medical Home

Family members are the primary caregivers and support in a child’s life. Practices and healthcare organizations that are truly family-centered provide care in equal partnership with families, caregivers and children.

This page for families and caregivers from the National Resource Center for Patient/Family-Centered Medical Home includes tools, resources and links to information that will assist families in successfully partnering with their child’s medical home. It includes templates for how to build a care plan for your child.

Region 4 Genetics

Learn about the newborn screening information in Illinois and bordering states in Region 4.

Starbright World

This site has been created for teens with chronic and life threatening medical conditions, and their siblings. The goal of the site is to help teens connect with other youth like themselves.

Brain Injury Association of Illinois

The Brain Association of Illinois (BAI) is a statewide, non-profit organization providing advocacy, information and support to people with brain injuries, family members, friends and rehabilitation professionals.

The BIA of IL is part of a network of brain injury associations across the United States, and is an affiliate of the Brain Injury Association of America (BIAA).

United Spinal Association Illinois Chapter

The United Spinal Association Illinois Chapter (USAIC)  is a non-profit offering information and support resources for people paralyzed by trauma and medical conditions. It also serves family members and health care and related professionals serving the spinal cord injury community. USAIC is located in Palos Heights but provides information, events and educational programs statewide. Its programs include:

  • Virtual and in person peer support groups
  • The “Living with Spinal Cord Injury” program for health professionals and health science students
  • “Injury Prevention” for school children, seniors and other groups featuring members’ experiences, and information on preventing injuries and falls
  • Advocacy and more

United Cerebral Palsy

United Cerebral Palsy (UCP) promotes a life of inclusion and provides resources for individuals with cerebral palsy and other disabilities, their families and communities.

The UCP website has resources on topics including assistive technology, housing and home modification, travel and transportation, education, caregiving and more. You can also find UCP affiliates in the state of Illinois.