NORD: National Organization for Rare Disorders

The National Organization for Rare Disorders (NORD) offers support, information and a variety of events for clinicians, researchers, patients and families affected by rare diseases.

NORD’s Resource Center provides patients and caregivers with free webinars, fact sheets, infographics, links to support and advocacy groups, and referrals for rare disorders.

NORD’s RareCare Program website provides a list of financial assistance programs that can help patients obtain life-saving or life-sustaining medication they could not otherwise afford.

NORD’s State Resource Center lists local, state, and national organizations by state or topic, offering free or low-cost services for people impacted by rare diseases.

La Organización Nacional de Enfermedades Raras (NORD) en español – Si desea hablar con alguien de NORD en español, por favor llame al (844) 259-7178 para asistencia en los siguientes horarios:
Lunes-Jueves 7:30 a.m. – 6 p.m., o viernes 7:30 a.m. – 5 p.m.

NORD’s free, self-paced online course “From Records to Research: Making Sense of Health Data for Rare Diseases” provides help with understanding health data and research participation, and how both contribute to improving treatments and care. The course is available:

• In English
• In Spanish