Social Security Disability Evaluation Process for Sickle Cell Disease Toolkits for Adults, Children and Health Professionals

The Social Security Administration (SSA) offers toolkits for people with sickle cell disease and professionals navigating the disability application and evaluation process. The toolkits provide detailed information, examples of the types of medical evidence required for individuals with sickle cell disease, and tips to help with the disability application and evaluation process:

Family Economic Mobility Toolkit

The “Family Economic Mobility: Taking Charge of Your Future” toolkit offers families help to set financial goals and create action plans for tracking progress. The toolkit includes a series of videos and an online resource guide with links to agencies and support programs.

The U.S. Department of Health and Human Services’ (HHS) Administration for Children and Families provides the toolkit.

 

Least Restrictive Environment Inclusion Toolkit for Families of Young Children With Disabilities

Early CHOICES’ Least Restrictive Environment (LRE) Inclusion Toolkit aims to help families of children with disabilities navigate the early childhood system to ensure their child is included in the LRE. Whether you’re just beginning your journey or looking for specific support, this toolkit will empower you to champion inclusion for your child.

The LRE Inclusion Toolkit includes:

  • Evidence for the benefits of inclusion
  • Federal guidance for inclusion
  • Resources with links and guidance to help you understand and use the tools effectively
  • Bolded keywords throughout the document that you can easily find in the “Glossary” at the end of the toolkit
  • QR codes for each of the embedded links

DSCC’s Transdev Transportation Prior Approval Tip Sheet

Medicaid will pay for transportation to and from appointments that Medicaid covers. For example, Medicaid will pay the cost for a trip to see a specialist.

This tip sheet from the Division of Specialized Care for Children (DSCC) explains how to use Transdev to submit prior approvals for transportation.

Transdev Transportation Prior Approval Tip Sheet in English

Transdev Transportation Prior Approval Tip Sheet in Spanish 

EngineerGirl

EngineerGirl focuses on diversity of thought and the many opportunities engineering represents for girls and women. The EngineerGirl website includes inspiration, information about women engineers and their achievements, “Try This” design challenges, a writing contest, summer study programs for high school students and more. EngineerGirl offers girls interested in problem-solving and engineering.

Visit its website for information about engineering scholarships and the EngineeringGirl annual writing contest.

Bridgeway

Bridgeway provides a wide range of programs for people with developmental and intellectual disabilities in west-central and northern Illinois. Bridgeway offers a variety of person-centered programs that focus on greater choice, achieving independence and community participation. Bridgeway programs include:

  • Day services
  • Adult learning services
  • School-based counseling
  • Community living and supports
  • Employment programs
  • Substance use assessments and programs for youth and adults

Aspire

Aspire partners with people with disabilities to explore new possibilities in living, learning and working. Programs focus on furthering diversity, inclusion, and life and career skills for adults with developmental disabilities throughout Chicagoland and surrounding suburbs, southeast Wisconsin and virtually. Aspire services and programs include:

  • Community homes
  • Independent living support
  • Life enrichment
  • Virtual life coaching
  • Job training and support

Independent Living Radio/Radio Vida Independiente

Independent Living Radio/Radio Vida Independiente broadcasts 24 hours a day, seven days a week via the internet. The station aims to promote inclusion and awareness about issues related to disability. In addition to music, the station provides programs in English and Spanish on topics including:

  • Adaptive technology
  • Disability programs and services
  • Employment
  • Laws
  • Activities around the world

Progress Center for Independent Living Serving Suburban Cook County

The Progress Center for Independent Living serves over 133 municipalities throughout suburban Cook County. It is a community-based, non-profit, non-residential service and advocacy organization operated for people with disabilities, by people with disabilities. Progress Center provides a variety of training and education services, housing assistance, and tools and resources for people with disabilities to live independently in their own homes. These include:

  • Youth transition to adulthood program
  • Independent living skills training
  • Peer counseling
  • Housing assistance
  • Deaf services
  • Braille classes
  • Radio Independent Living 24/7

United Spinal Association

The United Spinal Association empowers and advocates for wheelchair users and people with spinal cord injuries and disorders (SCI/D) nationwide. The organization provides local chapters, disability resources, peer support, a manual wheelchair guide and app, a health equity checklist and toolkit and more. Its resources include: