Habitat for Humanity Provides Accessible Home for DSCC Family

March 28th, 2019

The front of the Barmaki family's new accessible home built through Habitat for Humanity

Community support helped the Barmaki family achieve homeownership.

Raising five children in a small two-story apartment is difficult. It’s especially challenging when one of them uses a wheelchair.

Jaouad and Hoda Barmaki had to carry their daughter Bayan up and down the steps to access the bathroom and her bedroom. Bayan, 11, is unable to walk due to scoliosis, cerebral palsy and other health conditions.

DSCC participant Bayan Barmaki smiles while sitting in her wheelchair during a medical appointment

Bayan Barmaki, 11.

This challenge was daily life until the Barmakis applied for Habitat for Humanity of Champaign County’s homeownership program.

With Habitat’s help and community support, the Barmakis now have a brand-new one-story home that’s fully accessible for Bayan’s needs.

“It’s so much easier,” Jaouad said. “No more going up and down the stairs. If I’m not here, my wife can easily get (Bayan) where she needs to be.”

Jaouad and Hoda moved from Morocco to Champaign, where they got married and started a family. Bayan is their oldest child.

Bayan became enrolled with the University of Illinois at Chicago’s Division of Specialized Care for Children (DSCC) shortly after birth.

Jaouad said DSCC’s support has been extremely helpful for his family, especially when he faced language barriers when communicating with certain providers.

Jaouad Barmaki explains how the shower lift works in his family's new, accessible bathroom.

Jaouad Barmaki explains how the shower lift works in his family’s new, accessible bathroom.

After Habitat accepted the Barmakis’ application, the family’s DSCC Care Coordinator Dan Beagles and Bayan’s school physical therapist helped provide input on the building plans.

“We met at the Habitat office here in town, and the builder had the blueprint of what he was picturing,” Dan said. “We went over what would benefit Bayan the most with accessibility and safety.”

The Barmakis’ new home has zero-step entrances and a more spacious floor plan to make it easier for Bayan’s wheelchair to navigate. Her bedroom has a widened doorway, and the bathroom features a roll-in shower with a lift.

The new home is also located near the Barmaki children’s schools and has plenty of yard space for the kids to play outside.

As part of the homeownership program, the Barmakis put in 250 hours of “sweat equity” that included home maintenance classes, hours working in the

Jaouad Barmaki points out the zero-step entrance from the garage into his family's new home.

Jaouad Barmaki points out the zero-step entrance from the garage into his family’s new home.

Habitat ReStore and working on the build site.

They moved into the house on March 7.  Local news outlets, including WCIA 3 News and Smile Politely magazine, covered the house’s dedication.

Jaouad recently took Dan on a house tour during one of Dan’s regular home visits with the family.

He said everyone involved in the building process was very helpful and his family is deeply grateful.

Dan enjoyed seeing the finished house and how it’s improved their quality of life.

“It couldn’t have happened to a nicer family,” Dan said. “They are such a joy to work with.”

Congratulations to the Barmakis!

DSCC Mom Raising Funds and Awareness for Epilepsy

March 22nd, 2019

Portrait of Division of Specialized Care for Children participant Everett Jamison

Trisha Jamison’s son Everett has Dravet syndrome, a rare form of epilepsy.

Life with epilepsy can be a hard battle and an emotional roller coaster.

“To watch your small child have a seizure for an hour and be so helpless is the absolute worst feeling in the world,” Trisha Jamison said.

Trisha’s 3-year-old son Everett has Dravet syndrome (DS), a rare form of epilepsy that causes developmental and cognitive delays. He’s been enrolled with the University of Illinois at Chicago’s Division of Specialized Care for Children (DSCC) for the last two years.

After his diagnosis, Trisha immersed herself in research and connected with other parents  and individuals who have been affected by epilepsy and DS.

Her connections led her to start a successful 5k walk last October that raised more than $11,000 for the LaSalle County Epilepsy Foundation, Dravet Syndrome Foundation research and local families affected by epilepsy. Trisha says the plan is to make the walk an annual event.

“My personal driving force is after attending some Dravet syndrome conferences and talking to many in an online DS caregiver support group, there are a lot of clinical trials and research being done for better medicines and a potential cure,” Trisha said. “In reality, these trials and research need money to continue, so the thought of them potentially finding a cure for my baby made me jump at the chance to fundraise for these trials. I thought it’s the least I could do.”

The idea for the “Seize Hope” fundraiser and awareness walk on Oct. 13 came from her friendship with Erika Fleck of the LaSalle County Epilepsy Foundation of North Central Illinois.

Trisha and Erika met through a mutual friend. Erika, who was diagnosed with epilepsy in adulthood, became a great resource for Trisha. The pair have attended several DS and epilepsy conferences together and decided to try fundraising for both foundations.

“The idea for the 5k walk came to us because there’s nothing like that in our area for Epilepsy or Dravet syndrome awareness, yet there are a lot of individuals in our area that have been affected by seizures in some form or another,” Trisha said.

“We decided to do this, not just for the financial aspects but to raise awareness and let people know that they’re not alone and there are resources out there for them.”

Trisha said she initially hoped for 50 runners and to raise several hundred dollars. But the community support exceeded her expectations with more than 100 registered walkers and $11,000-plus raised.  The Times newspaper in Ottowa and the LaSalle NewsTribune each covered the event.

While most of the funds were donated to support research, Trisha said a small portion of the proceeds were kept to support local epilepsy families with resources and related expenses.

“I want parents and caregivers to know there are support groups and so many resources available in this day and age.  I couldn’t do daily life without those other parents.  They are encouraging and so full of knowledge,” Trisha said.

Everett has daily atonic or drop seizures, which cause a partial or complete loss of muscle tone, and is cognitively closer to a 1-year-old. Doctors initially told the Jamisons that Everett wouldn’t walk but with frequent physical therapy, he took steps last fall.

“He is on four meds and has a VNS (vagus nerve stimulation) device. But you know what, that isn’t who he is.  He is so funny. He is, most of the time, so happy,  and he gives the best hugs in the world,” Trisha said.

She urges other DS and epilepsy families to be an advocate and voice for their child.

“Buckle up, hold on tight and don’t give up hope,” Trisha said.

DSCC Teamwork Helps Infant Heart Patient

February 22nd, 2019

Care Coordination in Action text with DSCC logo

DSCC staff provide an air conditioner to family of baby boy recovering from heart surgery in triple-digit temperatures.

Families enrolled with the University of Illinois at Chicago’s Division of Specialized Care for Children (DSCC) know their care coordination team is here to help. This help can include finding resources and developing a care plan to meet their unique needs and goals.

What our families may not realize, however, is how many DSCC staff work together behind the scenes to help our Care Coordinators find the best solutions for their child.

A powerful example of this group effort occurred after a 4-month-old baby boy underwent open heart surgery during a stretch of dangerously hot temperatures.

The boy was born with a heart condition shortly after his family moved to Illinois. After spending several weeks in the neonatal intensive care unit, he was able to go home in June and prepare for surgery later in the fall. However, his family soon learned that the surgery couldn’t wait. He underwent the procedure in July.

“It was a blow to them,” their Care Coordinator Robin Mahnken said. “But, they did the surgery and he went through it with flying colors.”

Shortly after the surgery, DSCC Administrative Services Coordinator Debbie Cole called the baby’s mother to check in. The mother reported that her son’s recovery was going well until an intense heat wave hit the area. The family didn’t have an air conditioner, and she was concerned how the extreme temperatures would affect him.

“Instead of saying, ‘I’m sorry to hear that,’ Debbie went, ‘Hmm, I wonder if we can help,’” Robin recalled.

Debbie went to Robin and the two began brainstorming ways to get an air-conditioning unit for the family’s home. Robin soon learned that durable medical (DM) equipment providers would not be able to help. She then went to her supervisors, who suggested an alternate way for DSCC to support the cost for an air conditioner.

Robin then got to work trying to find a non-medical, general merchandise retailer who would be able to bill DSCC for the cost of the air conditioner.

Robin contacted a big box retailer in town, which was willing to help. But, there were several administrative hurdles to overcome. She enlisted the help of two store managers, their general manager and a clerk to develop a plan for the store to accept a prior approval from DSCC to provide the air conditioner.

Robin then worked with DSCC Claims Services staff and the Provider Data Unit to enroll the retail store as a provider and work out a solution for payment. Claims Services Supervisor Michele Dillon even called into the office while on vacation to work with DSCC’s Business Office and Provider Data Unit to make sure a solution was reached quickly so the retailer could be paid as soon as possible and the family could have the much-needed air conditioner.

Once a payment solution was reached, another DSCC Care Coordinator went with Robin to pick up the air-conditioner, deliver it to the family’s home and install it for them.

“That is how a family with a 4-month-old baby who just underwent open heart surgery was able to get an air conditioner on a day when the heat index was 113 degrees at 2 p.m.,” Robin said. “This whole organization and this whole other business pulled together to help this one little person.”

We are extremely proud of our compassionate employees and their willingness to go the extra mile to provide the best outcomes for our families.

DSCC Regional Manager Mary Gruenich put it best – “In my 25-plus years at DSCC, I have witnessed  many outstanding examples of dedicated and caring staff going above and beyond to meet the needs of their families.  However, I don’t recall such an exemplary example of true care coordination that involved so many units within DSCC to meet the needs of a 4-month-old cardiac patient… completed  within 24 hours!”

DSCC Participant Promotes Illinois Miss Amazing

February 11th, 2019

Illinois Miss Amazing Junior Teen Queen 2018 Izzy Gonzalez

2018 Illinois Miss Amazing Junior Teen Queen Izzy Gonzalez encourages others to share their talents and creativity.

Fifteen-year-old Izzy Gonzalez didn’t know what to expect when she decided to take part in her first Illinois Miss Amazing event in 2017.

Miss Amazing is a nationwide program that provides opportunities for girls and women with disabilities to share their abilities and ambitions.

Izzy attended the two-day Illinois event in Naperville that includes an interview, evening wear presentation and on-stage introduction.

She immediately fell in love with the experience and returned in 2018 to be crowned the Illinois Miss Amazing Junior Teen Queen.

Izzy Gonzalez smiling on stage during the 2018 Illinois Miss Amazing event

Izzy Gonzalez was named the 2018 Illinois Miss Amazing Junior Teen Queen.

Now, Izzy is ready to pass on her crown. She encourages other girls and young women with disabilities to consider Miss Amazing and other venues to share their talents and creativity with the world.

“It’s an amazing experience and if you’re kind of shy, it really helps you bring yourself out of your shell,” Izzy said.

Illinois Miss Amazing is currently accepting registrations for participants and volunteers for its 2019 event on April 5-6 at the Yellow Box in Naperville. The deadline to register is Feb. 15.

More information and the registration link is available on the Illinois Miss Amazing website.

Miss Amazing is for girls and women ages 5 and older who have an IEP, IPP, 504 plan, SSI or a physician’s records proving disability. The program aims to build self-confidence and life skills for participants as well as nurture a sisterhood of girls and women from different walks of life. The only cost to participate is five cans of food to be donated to the local community.

“It’s a fun way for them to shine,” Izzy’s mom, Susan, said.

Izzy was born with VACTERAL association, which is a group of birth defects that occurs together and affects many body systems. Izzy’s main issues are severe scoliosis as well as other orthopedic, urological, gastroenterological, neurological and respiratory issues.  She’s been a participant with the University of Illinois at Chicago’s Division of Specialized Care for Children (DSCC) since 2005.

Susan said Miss Amazing and other programs for youth with disabilities have helped her pinpoint her passion and become more confident.

Izzy says she first caught the theater bug through the Champaign-Urbana Theatre Company’s Penguin Project.  The Penguin Project is a national program that provides a supportive environment for children with disabilities to explore their creative talents in a community theater experience. Youth with disabilities are the artists and are joined on stage by “peer mentors” without disabilities.

Izzy Gonzalez dressed as the Genie during the musical Aladdin, Jr.

Izzy Gonzalez played the role of the Genie during the Penguin Project’s production of Aladdin, Jr.

Izzy joined the Penguin Project in 2016 and has done three musicals so far.

“From the end of the first show, I knew I just wanted to do this (acting),” Izzy said.

Izzy then learned about the Illinois Miss Amazing Program from one her fellow Penguin Project artists.

“I hadn’t done anything like that before,” she said of her first Miss Amazing event. “It’s hard to explain what it was like.”

Miss Amazing participants are asked to do a one-on-one interview, presentation in evening wear and a personal introduction. Izzy said the event also includes an optional talent showcase and a dance party on stage.

“They don’t judge you on this, it’s just for fun,” Izzy said, noting she chose to sing.

During her second Miss Amazing event, Izzy said she was shocked to be named junior queen.

“I was like, ‘Did they really just call my name,'” she said.

Susan said there were no words for seeing Izzy crowned on stage.

“My heart was so full,” she said.

Izzy says she’s looking forward to another fun Illinois Miss Amazing weekend and continuing to pursue her acting, singing and passion for theater.

She recently became involved with the Pens to Lens screenwriting competition. The Champaign Urbana Film Society runs the competition for  east-central Illinois K-12 students, who submit their written scripts for local filmmakers to produce as short films.

“For anyone who wants to share their creativity, I would say just do it. You never know what could happen,” Izzy said. “I didn’t know I would be able to write a screenplay, be an actress and win junior teen queen. You have to try.”

‘Illinois Pediatrician’ Highlights DSCC’s Care Coordination

February 1st, 2019

Logo for the Illinois Chapter of the American Academy of Pediatrics

Newsletter for the Illinois Chapter of the American Academy of Pediatrics promotes DSCC’s efforts to help families.

The University of Illinois at Chicago’s Division of Specialized Care for Children (DSCC) is honored to be included in the latest edition of “Illinois Pediatrician.”

“Illinois Pediatrician” is the print and electronic newsletter for the Illinois Chapter of the American Academy of Pediatrics (ICAAP). The winter 2019 edition features an article by Molly Hofmann, DSCC’s Associate Director of Care Coordination.

The article explains how our staff uses a comprehensive assessment to help our care coordination teams develop a person-centered plan for each of our families.

The person-centered plan is guided by the participant and family’s needs, wants, dreams and desires. It includes their desired outcomes/goals, strengths and needs. It also outlines the steps to achieve these goals and the barriers and risk factors with plans to minimize them.

You can read the article at http://illinoisaap.org/wp-content/uploads/37-1_Winter_Newsletter_ICAAP1218_FINAL_REV-1-25-19.pdf.

The newsletter also includes great articles about the 14th annual Illinois Statewide Transition Conference. DSCC is one of the conference’s co-sponsors.

A big thank you to ICAAP for sharing our efforts to drive positive change in the lives of our participants and families!

Job Opportunities for Chicago Teens and Adults with Disabilities

January 29th, 2019

Illinois Department of Children and Family Services logo

Illinois DCFS and Goodwill Great Lakes are connecting current and former DCFS youth with full- and part-time jobs.

The Illinois Department of Children and Family Services (DCFS) is partnering with Goodwill Great Lakes Food Services to provide job opportunities to current and former disabled youth in care.

Teenagers and adults will have the opportunity to learn new skills and earn a good wage while making a difference.

To be eligible for an interview, you must be:

  • 17 years old or older
  • A current or former youth in care with DCFS
  • Currently disabled
  • A resident of the Chicago metropolitan area

Low-cost shuttle service is available from designated locations in Chicago and Skokie.  Free shuttle service is available from the Great Lakes Metra Station.

Please contact Corey Shannon at (312) 405-0491 or corey.shannon@illinois.gov for more information and next steps for setting up an interview.

Also note that The AbilityOne Program requires disability verification from the youth’s caseworker to determine an individual’s eligibility.

A case worker will need to accompany applicants to the interview.

Below are tips to prepare for the interview:

  • Dress appropriately
  • Be on time
  • Show willingness to learn a new skill

DSCC Helps 4-Year-Old Come Home

January 11th, 2019

Phalynn Graham laughing

Great teamwork helped Phalynn Graham celebrate her first Christmas outside the hospital.

Christmas 2018 was an unforgettable celebration for Phalynn Graham and her family.

It was the first holiday that the 4-year-old was able to spend at home, outside of hospital walls.

Up until this winter, Phalynn had spent her entire life at Ranken Jordan Pediatric Bridge Hospital near St. Louis.

Her homecoming was the result of persistence and teamwork between Ranken Jordan staff, the Graham family, Phalynn’s medical team and her care coordination team from the University of Illinois at Chicago’s Division of Specialized Care for Children (DSCC).

Phalynn was born two months premature, and her lungs were not fully developed. She required constant use of a ventilator to breathe.

Phalynn was soon enrolled in the Home Care Program. DSCC operates the Home Care Program on behalf of the Illinois Department of Healthcare and Family Services.

The Home Care Program partners with families to help them care for children that need shift nursing care at home. The program helps these children live at home with community supports.

Initially, Phalynn’s medical conditions were not stable enough for her to go home. Then, her family needed to find in-home nursing that met Phalynn’s healthcare needs and accommodated her mom, Shay’s, schedule. As KSDK News reported, Shay has lupus and undergoes dialysis three days a week.

Phalynn’s DSCC care coordination team at our St. Clair Regional Office worked to help the Graham family in any way possible. Their efforts included:

  • Following up with available nursing agencies
  • Following up monthly with the Grahams
  • Participating in care conference meetings regarding Phalynn’s care needs
  • Collaborating with Ranken Jordan staff
  • Working with the medical equipment company to ensure Phalynn’s needs could be met at home

With in-home nursing in place, Phalynn was discharged from Ranken Jordan on Dec. 20, just in time for Christmas. KSDK News was there to cover her homecoming.

“It was great,” Shay said, noting they had spent four Christmases in the hospital. “It went well and she got real tired opening her gifts.”

Shay said she is thankful for all of the support her family has received, including from DSCC.

“Everybody has been amazing. Everyone that we’ve come into contact with has been good people to me and Phalynn,” she said.

Our St. Clair Home Care team is ecstatic that Phalynn and her family experienced their first Christmas at home together. They will continue to support the Grahams as they adjust to their new home life.

You can read more about Phalynn’s journey and watch the KSDK News story at https://www.ksdk.com/article/life/heartwarming/4-year-old-girl-goes-home-for-the-first-time-in-her-life/63-5131ec97-8c16-4b94-8a11-a0399822d410.

DSCC Staff Spread Holiday Cheer to Families in Need

December 20th, 2018

Santa Claus poses in front of a Christmas tree backdrop at the DSCC Mokena Regional Office.

DSCC regional offices pitch in to provide gifts and Christmas magic to local families.

At the University of Illinois at Chicago’s Division of Specialized Care for Children (DSCC), we all share a common goal to help improve the lives of children with special healthcare needs and their families. This commitment often extends into the greater communities we serve and the organizations we partner with throughout the state.

This holiday season, the staff at several of our regional offices donated their time, resources and creativity to make sure local children in need have Christmas gifts and priceless memories. We’re proud of all of their hard work to be great community partners!

Mokena Regional Office

DSCC's Mokena Regional Office staff pose with SantaAt our Mokena Regional Office, staff transformed their conference room into the North Pole to host their first “Pictures with Santa” event on Dec. 13.

The man in the red suit stopped by to visit with a small group of our participant families and pose for pictures.

One of the families shared it was the first time their children got to meet Santa. Previous attempts were either too difficult or impossible because their child was frequently in the hospital.

Both families went home with a donated toy and our calendar and coloring books.

Lombard Regional Office

DSCC's Lombard Regional Office staff look at silent auction itemsEach year during the holidays, the building that houses our Lombard RO displays Christmas wreaths with tags attached. The tags have wishes on them from a boy or girl in the community whose family needs assistance.

Wishes range from makeup bags and books to items that they truly need, such as diapers and coats.

To help make these wishes come true, the Lombard Social Committee organized a silent auction on Nov. 28. The committee asked staff to donate any unused or gently-used items they had at home.

The auction raised $75, providing enough funds to fulfill the wishes for five children.

Rockford Regional Office

Donated gifts from the DSCC Rockford Regional Office under a Christmas treeThe Winnebago/Boone Foster Care Alliance is a collaboration of agencies that provide services to children in need in the community. Each year, the alliance organizes the “Adopt-An-Angel” project to provide Christmas gifts to local foster children and children involved with welfare services.

Our Rockford RO staff partnered with two of their building neighbors, the Illinois Department of Public Health and Illinois Guardianship Advocacy, to purchase gifts for these local “angels” this year.

Participating staff selected a tag for a foster child that included their name, age, gender and three gift ideas based on the child’s interests.

Rockford Regional Manager Shannon Jones said the original goal was to purchase gifts for 15 children. But, thanks to everyone’s generosity, the Rockford RO and their partners were able to provide gifts for 20.

“DSCC and the other state agencies within the RRO’s building have been participating in this program for over 10 years now, and it has been a great opportunity for everyone to come together to give back to the community we serve,” Shannon said.

Olney Regional Office

DSCC Olney Regional Office staff wrap presents for a family in needThe Olney RO team recently had a “wrapping party” to benefit a special local family in need.

For the last several years, Olney staff have participated in the Adopt-a-Family program through the Good Samaritan of Richland County.

This year’s adopted family recently moved to the area for a fresh start. The single mom has three children, ages 2 to 12.

The program gave Olney staff a list of the family’s needs with clothing sizes, shoe sizes and so on.

The Olney team split up the shopping duties and brought in all of the purchased gifts for a wrapping party.

The gifts will be delivered to the family this week.

Despite everything on this mom’s plate, she won’t have to worry about giving her children a memorable Christmas morning.

 

Olney Customer Service Associate Wins DSCC’s 2018 Award of Merit

December 3rd, 2018

Dalena Ralston

Olney Regional Office’s Dalena Ralston honored for outstanding service to children with special healthcare needs.

Dalena Ralston is the 2018 recipient of the Award of Merit from the University of Illinois at Chicago’s Division of Specialized Care for Children (DSCC). The award recognizes exceptional employees for outstanding dedication and service to children with special healthcare needs.

DSCC is a statewide program that partners with Illinois families and their local communities to help children with special healthcare needs connect to services and resources.

Ralston is a Customer Service Associate in our Olney Regional Office. She’s known as the heart of her office who keeps operations running smoothly and in the best interest of DSCC’s families.

“Dalena embodies DSCC’s focus on partnerships and connections to help children with special healthcare needs achieve their full potential,” DSCC Executive Director Thomas Jerkovitz said. “She works hard to develop relationships with both our families and the healthcare providers who serve them to create a seamless support system.”

Ralston’s colleagues say she is the caring voice that greets all callers and visitors to the Olney office, providing a compassionate ear and a quick response for their needs and concerns.

Each family in DSCC’s program has a care coordination team that helps them identify their child’s medical, social, behavioral, educational and financial needs and develop a plan of care. Ralston takes the time to become familiar with the Olney office’s participants and their providers. She works quickly behind the scenes to make sure the care coordination teams have the necessary medical reports and paperwork to begin supporting families as soon as possible.

Ralston also tracks down available resources and community supports for families who are not eligible for our program but in need of assistance.

“I look forward to coming to work and enjoy helping people in whatever way I can,” Ralston said. “When you enjoy what you do and believe in the mission behind it, that is all you need to work hard and give it your all.”

DSCC staff nominated a total of eight of their colleagues for this year’s Award of Merit. As the winner, Ralston receives an Award of Merit memento, a $2,000 award and recognition from the Executive Director.

The other 2018 nominees are:

  • Ana Lule of the Mokena Regional Office
  • Kristina Marquez of the Rockford Regional Office
  • Mariangely Spilotro of the Lombard Regional Office
  • Mary Gruneich of the Springfield and St. Clair regional offices
  • Lisa Washington of the Lombard Regional Office
  • Kim Firkins of the Lombard Regional Office
  • Kathy Thomas of the Springfield Regional Office

Congratulations, Dalena! And a big thank you to all of the nominees for their excellence on behalf of our children and families!

Dalena Ralston and DSCC Executive Director Thomas Jerkovitz

DSCC Executive Director Thomas Jerkovitz poses with 2018 Award of Merit winner Dalena Ralston.

Mother-Son Partnership Helps DSCC Participant Thrive in College

November 13th, 2018

Cheryl and Jacob Flynn smiling together in their Quincy University apartment.

Jacob Flynn is fulfilling his college dreams with help from his mother.

Like many young adults his age, 20-year-old Jacob Flynn headed back to school this fall for his sophomore year of college. But there were no sad goodbyes with his mom, Cheryl.

Cheryl not only drove him to Quincy University (QU) but also lives with him full-time during the week in their own apartment on campus.

Jacob has cerebral palsy and is a participant in the University of Illinois at Chicago’s Division of Specialized Care for Children (DSCC). He requires round-the-clock assistance because of his mobility issues.

Cheryl decided to become Jacob’s personal aide so he can fulfill his dream of earning a college degree.

The mother-son duo says QU has been the perfect fit for Jacob’s needs. It’s also helped him gain a greater sense of independence.

“I always wanted to go to college like everybody else because I knew that was the only way I could get a job,” Jacob said. “Plus, I had advisors at (high) school that gave me options and opportunities to get here.”

Cheryl said she’s always encouraged her son to aim high.

Jacob Flynn poses on Quincy University's campus

“Just know that it’s possible. Some people will say it’s not, but it is. You have to work hard and try your best and you’ll make it,” Jacob said.

“I’ve always pushed him like a normal child,” she said.

Jacob earned good grades while attending Brown County High School. As he and Cheryl researched college options, they learned that personal aid services would only be available for up to 16 hours.

Cheryl knew that amount isn’t sufficient for Jacob’s needs. She decided to become his personal aide to make sure he received the right accommodations and support.

The next step was finding the right college. Jacob said he was interested in attending a small school so he could easily get around campus. He and Cheryl eventually toured QU, a school of 1,100 students. They immediately felt right at home.

“The people were very nice,” Jacob said.

Cheryl joked that once Jacob saw the pizza oven in the cafeteria, he was sold. Jacob also received an academic scholarship from the college in addition to a scholarship from the Tracy Family Foundation.

The Flynns said QU staff members were extremely helpful in letting them look at available apartments and measuring doorways to ensure Jacob’s wheelchair could fit.

They were able to move into a first-floor, accessible apartment in the center of campus, close to Jacob’s classes and the cafeteria.

While they were moving in, a professor not only helped them unload their van but offered to check if Cheryl could get a discounted meal plan so she could eat with Jacob in the cafeteria. The college’s dining service, Chartwells, offered to let Cheryl eat on campus at no charge. The free meals have been a huge help, she said.

Jacob meanwhile has taken a full load of classes each semester. He initially wanted to major in computer science but changed his mind to focus on history.

Jacob Flynn pets the dog of Quincy University's Director of Safety and Security Sam Lathrop.

Jacob visits with Quincy University Director of Safety and Security Sam Lathrop and his dog.

During class, Cheryl takes notes for Jacob. He also uses a dictation program to type what he says. Jacob also has extended testing times for exams and tells Cheryl what to write.

Cheryl said that though she is on campus with her son, she does her best to “take off her mom hat” and let Jacob do things that a typical college student would like to do, like eat junk food and go to dinner with friends.

Jacob says he enjoys the greater independence.

He’s become well-known on the Quincy University campus and has met people from around the world.

Jacob earned a 3.9 GPA and was also nominated for QU’s Freshman of the Year. He also received a leadership award.

Jacob and Cheryl say it’s important for youth with disabilities to start their college planning early and make time to speak with college staff and other students.

“Talk to people to make sure they’re accommodating,” Cheryl said. “From the cafeteria to the groundskeepers to the housekeepers, everyone here (at QU) has been so helpful.”

The Flynns also use their DSCC Care Coordinator, Kathy, as a resource to help with any of Jacob’s equipment needs, such as a wheelchair lift for their vehicle, and questions about the transition from pediatric to adult services.

Jacob said he wants his peers to see that people with disabilities are no different than they are. He also wants to encourage other youth with disabilities to stay focused on their goals.

“Just know that it’s possible. Some people will say it’s not, but it is. You have to work hard and try your best and you’ll make it,” Jacob said.