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Find out about news and events for children with special healthcare needs.

To view information specific to your area, visit your Regional Office page. You can also use the search field in the upper right hand corner to narrow your view.  For example, you can search for camps, workshops, a specific topic, or by condition.

PKU Study Needs Participants

November 13th, 2014

Help clinics understand how they can assist families caring for children with PKU. Research conducted by the University of Louisville aims to help clinics offer improved care and support for families of children with PKU….

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Gas Stove Safety

November 3rd, 2014

A recent study found increases in respiratory illness such as asthma and bronchitis when gas stoves are not used properly. Researchers recommend using a ventilation system to make sure air pollutants like carbon monoxide and…

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How to Get Health Insurance

October 31st, 2014

Get the health coverage you need. The Health Insurance Marketplace helps uninsured people enroll in health coverage. You can compare health plans by using the Marketplace website or making an appointment with a Navigator.  A…

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Preventing Unintentional Injury

October 23rd, 2014

Learn the risks, common causes, and prevention strategies of unintentional injury. Developmental Pediatrician, Dr. Patty Huang, talks about the key factors that place children with special health care needs at risk for unintentional injury. Dr….

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Guide By Your Side Newsletter

October 3rd, 2014

Guide By Your Side is by parents, for parents. Trained parent guides offer information, support, and resources. Check out their latest newsletter for several upcoming events, many focused on hearing loss.

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Get Paid for Your Thoughts

October 3rd, 2014

Offer your suggestions on the redesign of the National Survey of Children’s Health. An important survey about children’s health is being redesigned to improve the questions. If you have an hour of time and you’re…

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Keeping Insurance for Young Adults

October 3rd, 2014

Learn about insurance options available as your child ages to a young adult. This Family Voices article describes the different types of insurance coverage available for young adults with special needs. In some cases, your…

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Cleft Lip & Palate Linked to Smokingsun-icon

September 24th, 2014

Researchers found smoking during pregnancy can cause cleft lip and palate. Cleft lip and palate are physical birth defects that occur when a baby’s lip or mouth do not form properly during pregnancy. The 2014…

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