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TZID:America/Chicago
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BEGIN:VEVENT
UID:6609@dscc.uic.edu
DTSTART;TZID=America/Chicago:20260929T130000
DTEND;TZID=America/Chicago:20260929T140000
DTSTAMP:20260924T214601Z
URL:https://dscc.uic.edu/events/webinar-the-best-kept-secret-programs-and-
 policies-across-states-to-support-accessible-homes-for-children-with-disab
 ilities/
SUMMARY:Webinar - "The Best Kept Secret - Programs and Policies Across Stat
 es to Support Accessible Homes for Children with Disabilities"
DESCRIPTION:Gain insight into how different states help support accessible 
 housing for children with complex needs and their families\, as well as st
 rategies for helping families access supports\, in this free webinar\n\nTh
 e Lucille Packard Foundation for Children's Health will host "The Best Kep
 t Secret - Programs and Policies Across States to Support Accessible Homes
  for Children with Disabilities" on Sept. 29 from 1 to 2 p.m. This webinar
  is the second in a two-part series on home accessibility for children wit
 h disabilities and complex health needs.\n\nThis series provides insight i
 nto how different states help support accessible housing for children with
  complex needs and their families. The information comes from a foundation
 -funded study that included interviews with over 60 experts across 10 stat
 es.\n\nA panel of experts\, including those with lived experience\, will d
 iscuss:\n\n 	Examples of home modification resources available across the 
 United States\n 	How they are structured within different systems\n 	Strat
 egies for helping families identify and access these supports\n\nCallie Ka
 plan\, Senior Research Scientist at Ann &amp\; Robert H. Lurie Children's 
 Hospital of Chicago\, will host this discussion with panelists:\n\n 	Dr. C
 arolyn Foster\, MD\, MS\, Assistant Professor of Pediatrics at Northwester
 n University Feinberg School of Medicine and an attending physician at Ann
  &amp\; Robert H. Lurie Children’s Hospital of Chicago in primary and co
 mplex care. She is also a primary investigator of the Foster Health Lab an
 d directs Lurie Children's Stanley Manne Research Institute's Health@Home 
 Initiative. Dr. Foster is also chair of the Division of Specialized Care f
 or Children's Medical Advisory Board.\n 	Lori Berrong\, ATACP\, MEd\, MFA\
 , is the Executive Director of the Assistive Technology Program of the Mar
 yland Department of Disabilities. With more than 20 years in the disabilit
 y and assistive technology field\, Lori Berrong brings extensive experienc
 e in policy\, government program leadership and direct Assistive Technolog
 y service delivery.\n 	Dr. Molly Hofmann\, APRN\, DNP\, provides leadershi
 p for four statewide care coordination programs and oversees the Title V s
 ystems of care initiatives for which the University of Illinois Chicago's 
 Division of Specialized Care for Children (DSCC) is responsible as Illinoi
 s' Title V program for children and youth with special healthcare needs. S
 he is committed to strengthening systems of care that improve health outco
 mes and enhance the experiences of children and families across Illinois.\
 n 	Dr. Rebecca Seltzer\, MD\, MHS\, is an Associate Professor of Pediatric
 s at the Johns Hopkins School of Medicine in the Division of General Pedia
 trics\, with joint faculty appointments at the Berman Institute of Bioet
 hics\, Bloomberg School of Public Health\, and Johns Hopkins School of Nur
 sing. Her academic work focuses on optimizing the care and well-being of c
 hildren with medical complexity and disabilities. She is a primary care pe
 diatrician at the Johns Hopkins Harriet Lane Clinic. Dr. Seltzer is an Ass
 ociate Program Director within the Johns Hopkins Pediatric residency progr
 am and co-directs the Health Equity and Advocacy pathway.\n 	Tami Allen is
  the Co-Executive Director for Families Together Inc.\, the Kansas Parent 
 Training and Information Center and Project Director for the Family-to-Fam
 ily Health Center. She has had over 35 years of experience working with Fa
 milies Together as a voice for children and youth with special health care
  needs. Tami's son Skylar is a young adult with special health care needs\
 , including cerebral palsy.\n\nDiscussion topics will include:\n\n 	Exampl
 es of home modification resources available across the United States\n 	Ho
 w they are structured within different systems\n 	Strategies for helping f
 amilies identify and access these supports\n 	Why these resources remain u
 nder-recognized and what can be done to connect families to support intend
 ed for them\n 	Where gaps persist\n\nA question-and-answer session with th
 e audience will follow the panel discussion.\n\nThe webinar is free. Self-
 advocates\, families and professionals are welcome to attend.\n\nRegister 
 for "The Best Kept Secret - Programs and Policies Across States to Support
  Accessible Homes for Children with Disabilities" on Zoom and learn more a
 bout the panelists.
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TZID:America/Chicago
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DTSTART:20260308T030000
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