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TZID:America/Chicago
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BEGIN:VEVENT
UID:6012@dscc.uic.edu
DTSTART;TZID=America/Chicago:20260121T190000
DTEND;TZID=America/Chicago:20260121T200000
DTSTAMP:20251218T140857Z
URL:https://dscc.uic.edu/events/webinar-in-the-room-navigating-the-space-b
 etween-adjustment-and-acceptance-in-the-context-of-a-genetic-diagnosis/
SUMMARY:Webinar - "In the Room: Navigating the Space Between Adjustment and
  Acceptance in the Context of a Genetic Diagnosis"
DESCRIPTION:A free webinar for caregivers\, families and medical profession
 als discussing the many stages of adjusting to a child's genetic diagnosis
 \, coping strategies and how professionals can support families\n\nThe Cou
 rageous Parent Network will host "In the Room: Navigating the Space Betwee
 n Adjustment and Acceptance in the Context of a Genetic Diagnosis" on Jan.
  21 from 7 to 8 p.m.\n\nReceiving a genetic diagnosis (or lacking a diagno
 sis) for a child can be a profoundly life-altering experience for families
 .\n\nTake a deeper dive into this experience with licensed genetic counsel
 or Mary-Frances Garber\, MS\, CGC.\n\nMary-Frances will draw on her extens
 ive experience working with parents and caregivers to explore the complex 
 emotional responses that emerge as families learn to live with a diagnosis
  or uncertainty and build their “new normal.”\n\nJoin Mary-Frances and
  this panel of parents\, Dr. Tasha Faruqui\, Joanne Huff\, and Naomi Will
 iams\, as they explore the realities of accepting versus adjusting to thei
 r child’s medical complexity while navigating its challenges.\n\nThe dis
 cussion will include:\n\n 	The difference between emotional adjustment and
  acceptance in the context of a child’s genetic diagnosis.\n 	The emotio
 nal responses and coping strategies parents may experience over time.\n 	H
 ow a genetic diagnosis can be understood as one aspect of a child’s iden
 tity\, rather than a defining characteristic.\n 	Ways clinicians and medic
 al professionals can support families in light of a genetic diagnosis.\n\n
 The webinar is free.  The session will focus on caregivers and family mem
 bers. Healthcare providers and social workers are also welcome to attend.\
 n\nRegister for "In the Room: Navigating the Space Between Adjustment and 
 Acceptance in the Context of a Genetic Diagnosis" on the Courageous Parent
  Network website.
CATEGORIES:Webinar
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