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TZID:America/Chicago
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BEGIN:VEVENT
UID:5764@dscc.uic.edu
DTSTART;TZID=America/Chicago;VALUE=DATE:20260716
DTEND;TZID=America/Chicago;VALUE=DATE:20260717
DTSTAMP:20260317T144721Z
URL:https://dscc.uic.edu/events/living-our-best-pku-life-2026-community-co
 nference-in-chicago/
SUMMARY:"Living Our Best PKU Life" 2026 Community Conference in Chicago
DESCRIPTION:Get help navigating PKU\, learn about treatment advances and me
 et researchers\, clinicians and others with PKU\n\nThe National Phenylketo
 nuria (PKU) Alliance (NPKUA) will host the "Living Our Best PKU Life" comm
 unity conference from July 16 to July 19 at The Westin Chicago Lombard.\n\
 nThe 2026 community conference will bring together individuals with PKU an
 d their families\, industry partners\, researchers and clinicians to learn
 \, share information\, develop lasting friendships and make deep connectio
 ns.\n\nParticipants can explore a wide variety of topics\, including:\n\n 
 	Gene therapy 101 and advances in PKU\n 	Navigating mental health and PKU 
 across the spectrum of severity\n 	Transition of care from teens to adulth
 ood\n 	Maternal PKU and women’s health\n 	Managing movement and exercise
  with PKU\n 	Insurance and more\n\nOther activities and features will incl
 ude:\n\n 	An expanded and welcoming Kids Zone for children 12 and under\, 
 including newborns and toddlers.\n 	A Teen Zone for participants ages 13to
 17 with a dedicated supervisor\, hands-on cooking classes and other fun ac
 tivities.\n 	Low-cost registration fee for kids and teens.\n 	A "Pheast Di
 nner" for attendees with PKU ages 13 and older.\n\nRegister for the "Livin
 g Our Best PKU Life" community conference and see more details about the h
 otel\, conference costs and complete schedule. The early bird rate will a
 pply through March 31 at 10:45 p.m.\n\nYou can apply online for help to at
 tend the 2026 PKU conference. A limited number of need-based lodging grant
 s to community members with a direct connection to PKU are available.\n\nF
 or any questions or to get further involved\, please contact conference@n
 pkua.org.
CATEGORIES:Conference,Health Fair
LOCATION:The Westin Chicago Lombard\, 70 Yorktown Center\, Lombard\, Illino
 is\, 60148\, United States
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=70 Yorktown Center\, Lombar
 d\, Illinois\, 60148\, United States;X-APPLE-RADIUS=100;X-TITLE=The Westin
  Chicago Lombard:geo:0,0
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TZID:America/Chicago
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DTSTART:20260308T030000
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