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The Kosnar Family

The Kosnar Family

“I felt like I needed to be the one taking care of all of her special health care needs. Even though I wasn’t medically trained to do any of it, I felt like it was my job to take care of everything she needed.”

— Evonne Kosnar

“DSCC gave me the guidance and support I’d been looking for…”

Evonne’s daughters, Erica (14) and Morgan (12) were both “micro-preemies.”  Erica had a cranial hemorrhage (bleeding in the brain) during birth that caused her brain to swell.  “We found out she had other serious health problems, too,” Evonne shares.  Doctors also diagnosed Erica as having cerebral palsy, epileptic seizures, and acquired hydrocephalus (water on the brain).  Evonne says, “I felt like I needed to be the one taking care of all of her special health care needs.  Even though I wasn’t medically trained to do any of it, I felt like it was my job to take care of everything she needed.”

Two years later, the Kosnars welcomed their second daughter, Morgan.  Evonne says, “I began to feel overwhelmed with everything I had set for myself to take care of.  There were days I was so exhausted, I couldn’t even move.”  That’s when Evonne realized she was in need of additional medical help, guidance and support.

“My husband discouraged me from contacting Specialized Care for Children at first,” Evonne states.  “He thought involving them in Erica’s care would entail lots of paperwork and further complicate things for us.”  Specialized Care for Children will walk you through the application process whether by phone, at our office, or at your home.

Evonne was relieved when she contacted Specialized Care for Children.  She says, “The staff are so great to me, Erica, and my whole family.  I finally found the medical care, guidance and support I’d been looking for, especially from my care coordinator, Jan Anderson.”

Jan helped Evonne network with other parents of children with special health care needs and told her about health care conferences she could attend to learn more about health disabilities.  Evonne started attending Family Voices meetings, where she learned about individualized education programs (IEPs).  She is also involved with The ARC’s Future Stars program where she learned more about caring for people with disabilities.  Evonne became a member of Specialized Care for Children’s Family Advisory Council to “pay it forward.”  She says, “I want to be able to reach out to new parents who are also struggling, and help them find out for themselves how much Specialized Care for Children can help them, too.”

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